Monday, July 28, 2014

Surprises...

Anytime we have made the trip to Denver Children's hospital I am always amazed at how much they give away to the kids and families. I can't even begin to name all the things Greysen got but I will try: handmade quilt, handmade fleece blanket, handmade pillow case, a joy jar filled with toys, Lego sets, toy truck, stuffed animals, ironman costume, transformers...seriously the list goes on. The even greater thing is that all of those items were donated by people. 

I love people that love to give. 

If you've ever stayed at a Ronald McDonald house you will appreciate people that give. 

If you've ever had a child in the hospital for a lengthy time you will appreciate people that give.

2 days ago I got a phone call from the hospital in Denver. The woman on the phone asked where we would be staying during Greysens week long treatment and I told her we would try to stay at the Ronald McDonald house. It's $25 per night and our insurance will cover $20 per night so that comes out to $5 per night out of our own pocket. Big spenders I know! The problem with the RM house is that you cannot make reservations but instead have to call the morning of the day you plan to get there and see if there are rooms available. If nothing is open then you are out of luck and can try again the next morning. 

The woman on the phone informed me not to worry about my lodging because the hospital has a donor that would like to pay for our hotel and anyone else in the bowel management program! She asked if a queen suite was ok and then made the reservation for me. I really couldn't believe what I was hearing! 

This is a HuGE blessing for Greysen and I! I had looked into staying at this hotel but knew there was no way we could afford It. We also will not need a vehicle now because we can walk right across the street to the hospital. It's also right next to panera where I will be eating dinner every night:) 

God is watching out for us...

Greysen went on his first plane ride today and loved it! At first they had put us in completely different rows which upset me at first. It was his first time flying and I wanted to be sitting next to him! Some wonderful man switched me seats so I could be next to my son:) On our second flight we had an aisle seat and a middle seat. Greysen wanted to be by the window but since the flight was completely full I knew it wouldn't be possible. Well, everyone got on the plane and guess which seat was the only open seat on the plane???

God is so good to us even in the little things. He uses people to bless others and gives us the desires of our heart, even if its asking for the window seat on a plane:) 

I hope that I can use what the Lord has given us to bless others in the same way I have been blessed by the people that give to The Denver Children's hospital. Please keep Greysen in your prayers this week as he begins the bowel management program tomorrow and has to endure some not fun things. I am praying for complete healing or at least an improvement in his healing from his last surgery and a better quality of life before he starts school. Thanks everyone for reading and keeping us in your thoughts! 



                        First flight!

Friday, July 18, 2014

So here's the deal...


Life is crazy right now. Crazy in a good way but none the less crazy. Right now our entire life is boxed up and ready to be moved in 2 days! In the midst of my husband changing jobs and moving we have to plan a trip to Denver. After a lot of thought we decided it would be best for Greysen and I to fly down this time around. I thought that would make things easier but nothing is easy when it comes to dealing with insurance. I called to be sure everything was pre-approved and Denver Children's assured me they would handle it. We'll I wanted to buy our plane tickets but couldn't because I wasn't 100% sure that Greysens treatment would be covered. I have been on the phone everyday with them for the last week because Denver would tell me one thing and the insurance would tell me the opposite. I was so frustrated and tired of being on the phone (I really dislike talking on the phone) especially when I had been on the phone cancelling and switching utilities, reserving a moving truck, making rent arrangements, the phone calls we're never ending! To make a long story short I finally got the approval for Greysens treatment and Greysen will get his first plane ride in just a few short weeks. It's a good thing i made the calls because Denver called me back to apologize and didn't realize our insurance worked differently. I was really stressed that his insurance wouldn't cover the week long program so I was trying to figure out how we were gonna pay for it, because insurance or not, he needed to go. I'm glad that's one less thing to worry about. Everything seems to be falling into place and we appreciate any and all prayers. Going back to Denver is going to be great for Greysen. He has  been having a tough time lately and I am noticing more and more the emotional affect it is having on him. He could really use some prayers right now especially as he transitions to a new city, new school, and new friends. The other day Greysen was having a rough time and with tears in his eyes asked me, "Why did God make me this way?" That's a tough question but I was immediately reminded about the blind man in John 9 where the disciples ask Jesus who sinned to make this man blind, him or his parents and Jesus responds with, "Neither this man nor his parents sinned. This happened so that the work of God might be displayed in his life." That is my prayer thru all of this that Greysen will use his experience and struggles with this rare disease so others may see the work of God thru him! I know that God has a very special future for our boy:)