Biopsy Day!

April 26th finally arrived! For the last 4 weeks we had been doing rectal irrigation's everyday so that Greysen would stay healthy and his colon could hopefully not get as full as it had been. Greysen spent two days before his procedure on a clear liquid diet and lots of laxatives. I was surprised at how well it worked this time! Rewind to the month before when Greysen had to prep for his barium enema he had to follow a clear liquid diet and laxative schedule until everything in his system came out clear. Here is how its SUPPOSED to work:

8am 1 square of ex-lax
9am 1 square of ex-lax
Every half hour after 9am 1 full capful of miralax until you get results

We stuck with the schedule and gave him lots of popsicles and clear liquids. Then we waited, and waited, and waited.....and waited some more for him to go running to the bathroom. Nothing. The doctor told me that 1 square of ex-lax will send an adult running to the bathroom! At about 4 pm I decided to call the on-call specialist. The nurse told me to just keep giving him the Miralax and it would eventually work. So I did that and at about 9pm he went a tiny bit. At this point I had given him half a bottle of Miralax! I just kept thinking "This cannot even be possible!" The Next morning I called the nurse again and she told me to start the whole schedule again for the day. At this point I just thought he was going to explode. The poor guy was only supposed to go without food for a day and now we had to keep going. By the end of Sunday night I had officially given him 1 full large bottle of Miralax and 7 ex-lax squares. Now that I think about it I should have demanded that they clean him out in the hospital because in his condition that was dangerous and ridiculous! By 9 pm that night he had finally gone to the bathroom but he never got fully cleaned out for his procedure even after all of that. This was my first clue that something was extremely wrong with him and this was more than just chronic constipation.

Fast forward to April 26th, here we were in the waiting room of the surgery center, bowels prepped in a day, and ready to get some answers. Greysen was extremely nervous as this was his first time ever getting put under. Dr. Flass came in and explained the entire procedure to Greysen and even asked him if he wanted his stuffed monkey to get a scope in his butt as well hahaha. We LOVE doctor Flass! He had never had an IV either and luckily they were able to put him to sleep before putting his IV in. The entire procedure took about an hour and a half. Dr.Flass performed the sigmoidoscopy and then a surgeon came in and took 5 biopsies from through out his colon. Dr. Flass wanted to be sure that enough biopsies were taken because there is no way of physically seeing where there are or aren't nerves! After the procedure they came out and showed us the pictures of the sigmoidoscopy which looked pretty good except for a lot of wrinkles in his intestine due to the stretching. There were no signs of inflammation or an allergy so they told us we would have to wait until about Monday or Tuesday to get the results of the biopsy.

We took Greysen home for a day of recovery and he was never so happy to be able to eat again! And since his scope showed no signs of an allergy he was finally able to eat a regular diet and not dairy free! I wish I could remember what we let him! It was probably McDonald's! LOL

My prayer at this point was "Lord please let it be Hirschsprung's because if it isn't I cannot handle more questions!" I needed an answer and not more questions...